Long day. radiation and a Dr Dilling appointment this AM. They took pictures yesterday and they liked them. They don't like PT scans that much at Moffitt as a followup due to false positives. That's how I had throat biopsies, that were a false positive on a PT scan. They use CT scans and if something looks funny, then a PT scan. This limits false positives, saves money (insurance mandate) and limits radiation exposure. If you are not feeling, right, they will do them. Since November 2013, they have seen no PT activity. I had 1 in November 2013 and 1 in January 2014.

Everything is stable and I am feeling better by the day. If I miss a Mestinon dose, I hit a wall. They told me to not be afraid to take an extra dose if I need to. I am hoping the LEMS will completely recess but it isn't looking like it. It may be something to deal with the rest of my life.

After doing some research, I have found Myasthenia Gravis, LEMS and get this, Muscular Dystrophy very closely related. The MDA site is full of info about how these may be related. The medical field has long suspected this in research but have not yet to give a conclusive theory as to why or even if it's true.

I got kind of chewed out by the nurse, Oxy, I have two types, one long lasting and one for a boost, are to be taken on schedule. Now because of osteo-arthritis and bone spurs in my hip, they want me to take Naproxin (Aleve).

Dr Dilling was showing me a reduction schedule for the steroids I'm on for side effects of the PCI. I was looking at questions on my iPad and he said look here at this sheet and put that down for a minute. He was laughing his butt off at me.

Holy crap, the 60s all over again, fun, fun.

Half way through PCI. Things are going good since they put me on a Steroid to control brain swelling and the associated nausea. Trouble with that is a glucose reading of 150 and above is common. I'm supposed to give blood for a 3 month Diabetic checkup. It shouldn't bother the A1C much unless I'm on it too long. 

I think we will be going out to Bonefish Grill tomorrow to celebrate. :-)

This PCI crap is for the birds. Monster head ache and queazy on Monday. On Tuesdays we met with Dr Dilling, he said it is swelling in the brain gave me some steroids and they are working as far as the head aches and queasiness go. With 3 of 10 treatments done with, I hope this stuff is over with, sooner the better. This is a preventive treatment. There has been no evidence of Cancer since the first PT scan in November 2013. Another scan was negative in January 2014.

We met with our new Doctor. He spent about an hour and a half talking me and about an hour to Irene, including physicals. Young and seems knowledgeable enough, Dr Louis Contreras in Brooksville.

Irene's grandson Jake is coming for a visit the end of April. Should be fun, he's 19.

I had my Prophalactic Cranial Irradiation (PCI) simulation today at Moffitt. With the treatment the chances of the cancer reappearing in the brain is 20 - 25 %. Without the treatment it is a 60 - 65 % They make a plastic screen mold to go over your face and then fasten to the table. The actual treatments take about 3 or 4 minutes per session. 10 sessions in all. Then hopefully I'm done with treatments, FOREVER!!