Saturday, December 28, 2013
At home in Florida. All of my Doctor appointments are set up for here in Florida. Radiation will be here in Florida at the Moffitt Cancer Center, highly respected and about 1/2 hour away. It is a part of the University of South Florida Medical School and allot like UofM. Dr K set everything up through his contacts at Moffitt. I have a specialist in early stage small cell lung cancer, DR Thomas Dilling. The action starts January 15th. Feeling pretty good but taking it easy so far.
Thursday, December 19, 2013
Day 2 is done, love the in and out compared to the first day of each round. Already have a Moffitt Doctor lined up thanks to DR Gregory Kalemkerian and his staff.
DR Thomas Dilling, http://www.moffitt.org/
DR Thomas Dilling, http://www.moffitt.org/
Wednesday, December 18, 2013
Good day overall.
Blood draw at 10:15 AM, Meeting with Dr K at 11:15, then things slowed down a little. Some old hag told us we were too early to check in for infusion. We were there at 11:15 AM and the appointment was at 12:30 PM. Picky, picky, picky. We knew we'd have to sit awhile, we or I am used to that. We then walked to the other end of the Cancer Center and then into the Radiology Records Department and got my scans and xrays to take to Florida. That passed enough time to register for infusion.
At the Dr K visit he was very receptive to my getting radiation treatments at the Moffitt Cancer Center on the north east side of Tampa. It is allot like the UofM Hospital because it is a part of the University of South Florida School of Medicine. As a research hospital it is very much like UofM. Dr K even knows 2 radiologists at Moffitt, DR Stevens and Dr Shridhar. He is going to talk to Dr Stevens and set things up, scans and treatment. I have found an affiliate in the New Port Richey / Brooksville area, closer yet.
Dr K had a long talk with me about how some radiologists recommend a preventive radiation treatment to the brain. He advised against it for 3 reasons, it only has a 5% benefit, it could cause more neurological damage to someone with a neurological problem to start with and my age.
Of course we ate at the Broadway Cafe. Cheese Steak Hoagie for me and soup for Irene. Turns out the soup is not chicken but beef broth, scallions and whipped eggs drizzled into the hot broth. Simple enough and really yummy.
Two more short infusion days coming Thursday and Friday. We may try to leave Friday afternoon and drive for 8 hours or so. FLORIDA HERE WE COME!
Blood draw at 10:15 AM, Meeting with Dr K at 11:15, then things slowed down a little. Some old hag told us we were too early to check in for infusion. We were there at 11:15 AM and the appointment was at 12:30 PM. Picky, picky, picky. We knew we'd have to sit awhile, we or I am used to that. We then walked to the other end of the Cancer Center and then into the Radiology Records Department and got my scans and xrays to take to Florida. That passed enough time to register for infusion.
At the Dr K visit he was very receptive to my getting radiation treatments at the Moffitt Cancer Center on the north east side of Tampa. It is allot like the UofM Hospital because it is a part of the University of South Florida School of Medicine. As a research hospital it is very much like UofM. Dr K even knows 2 radiologists at Moffitt, DR Stevens and Dr Shridhar. He is going to talk to Dr Stevens and set things up, scans and treatment. I have found an affiliate in the New Port Richey / Brooksville area, closer yet.
Dr K had a long talk with me about how some radiologists recommend a preventive radiation treatment to the brain. He advised against it for 3 reasons, it only has a 5% benefit, it could cause more neurological damage to someone with a neurological problem to start with and my age.
Of course we ate at the Broadway Cafe. Cheese Steak Hoagie for me and soup for Irene. Turns out the soup is not chicken but beef broth, scallions and whipped eggs drizzled into the hot broth. Simple enough and really yummy.
Two more short infusion days coming Thursday and Friday. We may try to leave Friday afternoon and drive for 8 hours or so. FLORIDA HERE WE COME!
Monday, December 2, 2013
Appointment with the Neurology Department at UofM, Dr Jason Wong.
Of the 2 types of Eaton-Lambert (or Lambert-Eaton), I have the one that is usually brought on by a small cell lung cancer tumor. Treat the cancer and it tends to clear up fairly quickly. There are some other treatments that may help and they are being saved as future treatments, if needed. If the current treatment of Mestinon and Chemo do not work well.
They can include some plasma work, more IVIP and an experimental chemical called 3,4 DAP. These are used almost extensively for long term treatments. I was given 5 treatments of IVIP while in the Hospital at UofM.
The lead Doctor is thinking I won't need long term treatments and has agreed to wait a while longer.
They are thinking I should be back to doing most of what I want to do in 2 months or so.
Testing went very well, strength is coming back, reflexes have picked up. The reflexes they were very happy about.
Of the 2 types of Eaton-Lambert (or Lambert-Eaton), I have the one that is usually brought on by a small cell lung cancer tumor. Treat the cancer and it tends to clear up fairly quickly. There are some other treatments that may help and they are being saved as future treatments, if needed. If the current treatment of Mestinon and Chemo do not work well.
They can include some plasma work, more IVIP and an experimental chemical called 3,4 DAP. These are used almost extensively for long term treatments. I was given 5 treatments of IVIP while in the Hospital at UofM.
The lead Doctor is thinking I won't need long term treatments and has agreed to wait a while longer.
They are thinking I should be back to doing most of what I want to do in 2 months or so.
Testing went very well, strength is coming back, reflexes have picked up. The reflexes they were very happy about.
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